Pain: In torso from breastbone to hips – sunburn feeling. Firm pressure brings it some comfort. Brushing of my shirt against my skin hurts. On a scale from 1-10 (10 being severe pain), I think I’m at about a 5 (up from a 3-4 last month). Pain is on the right side of my abdomen.
Nausea: none – YAY!
Tiredness: Scale from 1-10 where 1 is hyper and 10 is exhaustion. I’m at around a 6 on most days. This is down from last month.
Emotional: I’m struggling with guilt. I have given up everything that I used to volunteer for and I’m kind of feeling lost right now with it. I feel very well right now, but after talking with other NMO patients and my husband we thought it would be wise for me to take a year off from my commitments so I can concentrate on my health. Well, it’s HARD and I’m having a hard time right now because of that.
Physical: I’m feeling stronger but still have a way to go. Some numbness and tingling when I have any type of jumping or impact exercise. I think I’m feeling pretty good, though I’m still pretty tired. When I’m tired I slur my speech and walk with a limp. I also have a hard time with transitions (sitting to standing, etc), so church can sometimes be difficult. This hasn’t changed since the last time I posted a symptom update. I have been going to the gym consistently, and although I haven’t lost any weight, I do feel much stronger and healthier.
Mentally: I think I’m doing well, but the memory retention isn’t the best. I get distracted easily. Once I get the house in order, I hope to start teaching myself Spanish for fun. 🙂
Other: I’m still hungry all of the time, but I should start weaning off of the prednisone by the end of the month. I’m really looking forward to that!
So that’s it for now – I’ll have another update next month! 🙂